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5 Years Later, Dad's Legacy

Five years...how did that happen? Time is a friend one day and an enemy the next.  It is hard to believe that time has flown by this...

5K Raises Funds for Rare Brain Disease

On November 1, nearly 70 walkers and runners gathered at Keswick Park to participate in the 1st Annual Strides4CJD 5K. Rainy weather did...

It’s been a year…wow.

Exactly a year ago I lost my dad to CJD.  It’s a strange realization to think it has been a whole year and we survived the initial ...

Remembering Dad in December

So we made it!  The first holidays without a loved one are always the hardest they say.  I can say that I completely agree with that ...

Thanksgiving Is Here

I cannot believe how time has flown by.  Summer is over and it seems like fall never happened with how chilly it is outside.  This time...

Loss, Cards and Volunteering

Losing a loved one is part of life.  I know that; we all do.  But when it actually happens, even when you know it’s coming, it is one of...

A Funeral

It has been a while since I posted.  To be honest, the family just needed to breathe a little and try to start to process what has...

I Miss You Dad

There are so many ways we all get our hearts broken throughout our lives but this one is one of the more painful.  For most of us, our ...

Open House Filled with Friends and Love

This weekend we opened our doors to family friends and dad’s colleagues.  After last Tuesday’s event at the CDC we realized that there...

A Great Big Thank You!

All I can say on behalf of my family is THANK YOU & WOW!  We are so grateful to this community for the amazing things you provide us each...

Happy 65th Birthday Steve!

Dad had a great day on his birthday, Dec. 30th, surrounded by a small group of close friends. Steve enjoyed some cake and ice-cream on...

A Family Blog for Family & Friends

On December 5th, we as a family were given unimaginable news, our father and husband, Steve, has Creutzfeldt-Jakob Disease (CJD.)  We...

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